This is Daphne, and she was born with Trisomy 18, a genetic disorder that is caused by there being 3 pairs of chromosome 18 rather than the normal 2.
The large majority of babies with Tri18 never make it past the womb and the ones that do, are rarely strong enough to live to see outside the NICU and hospital walls. Most deaths are caused by heart abnormalities, loss of kidney function, and other organ failures.
Daphne's story has spread and there are COUNTLESS people whose lives have been touched and COUNTLESS prayers being said from all over on this baby girl's behalf. She has continued to improve and surprise her doctors. When she was first born, the damage to her heart is what had concerned the doctors the most. Shortly after that, Danielle was told that Daphne wouldn't need the heart operation they had been telling her for months would be necessary. Days have gone by and on January 17th, perhaps the best news yet was given. The holes in Daphne's heart are somehow, inexplicably healing themselves. Danielle, Drew and family members along with so many others including myself, have ZERO doubt as to how and why these miracles keep happening. The prayers and faith and hope of everyone are healing the holes in her heart. She is alive and fighting because God needs her here on Earth to continue to inspire and teach those around her.
Daphne is now strong enough that today, she was discharged from the NICU in a Scottsdale Hospital. Something that a few days ago, no one was really sure would happen. She was transported to a Hospice House where Danielle and Drew will be given a few more days to transition to having her at home and along with her mom, will be taught about every little thing that will go into Daphne's care. Even with her feeding tube and oxygen, she will soon be at home in her own crib, continuing to bless and enrich the lives of so many people. "
My lovely readers, please keep this sweet angel baby in your prayers and hearts. Click on this button to be taken to the original post and to grab a button all your own to post on your blogs.
1 comments:
Thank you so much Sarah!
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